We had a brain scan done on the 25th February at sunway hospital. The report was not good. The tumor had grown bigger, 5.5 x 4.1 x 4.1 cm. We were devastated! The neurosurgeon could not offer anymore treatment now.
We saw Dr Ibrahim at Wijaya medical center and he suggest proton radiation therapy. This therapy is something like the normal radiotherapy. It directs highly precise beams of protons to kill the cancerous tumor. However, I went on to seek a second opinion from Dr Foo (oncologist from Subang Medical center) and she is not for it. It may not be effective at all since Norman already had 30 fractions of radiation therapy. Btw, the proton therapy is only available in Shan Don, Wanjie hospital in China. It takes 6 to 7 weeks to complete the therapy and cost about RM180,000! The other place that offers proton therapy is in Boston and the cost is double!
The other alternative is to start chemotherapy which could only temporary control the tumor growth. However we need to check the MGMT level of the tumor before we can start on chemo. This MGMT test can only be done in India!! The good Dr had make arrangment to courier the tumor specimen to India today and we need 1 week to get the results. This MGMT level will tell us wheather Norman is resistent to the chemo drugs.
I am so lost now. I need to make decisions fast and I feel so weary and burden.
If you all have any suggestions please write to me. Will blog again soon.
Dorothy
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2 comments:
MD Anderson Cancer Center in Houston has a proton therapy center and immediately appointments available.
www.mdanderson.org/proton
Wishing you all the best.
My dad passed away from a brain tumor just one month ago. i never thought i would be able to handle it, but God brought us through it. the best thing my dad did was proclaim, "God, your will be done" and found great peace in anything he faced after that. i do not believe it is God's will for us to die of disease, but no matter what happens, God IS WITH YOU. Bless you and your husband.
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